AAPD-CMA Beneficiary Survey Summary

The Center for Medicare Advocacy and the American Association for People with Disabilities issued a survey for Medicare beneficiaries under age 65. The data requested included some demographic information, and information about this population’s interactions with the SHIP and SMP programs.

1. What is your state of residence?

 
 
 
Created with Highcharts 4.1.1Alabama: 1.61%Alabama: 1.61%Alabama: 1.61%California: 9.68%California: 9.68%California: 9.68%Colorado: 1.61%Colorado: 1.61%Colorado: 1.61%Connecticut: 8.06%Connecticut: 8.06%Connecticut: 8.06%Florida: 1.61%Florida: 1.61%Florida: 1.61%Georgia: 1.61%Georgia: 1.61%Georgia: 1.61%Illinois: 3.23%Illinois: 3.23%Illinois: 3.23%Kentucky: 1.61%Kentucky: 1.61%Kentucky: 1.61%Maryland: 4.84%Maryland: 4.84%Maryland: 4.84%Massachusetts: 4.84%Massachusetts: 4.84%Massachusetts: 4.84%Michigan: 1.61%Michigan: 1.61%Michigan: 1.61%Montana: 1.61%Montana: 1.61%Montana: 1.61%New Hampshire: 1.61%New Hampshire: 1.61%New Hampshire: 1.61%New Jersey: 6.45%New Jersey: 6.45%New Jersey: 6.45%New York: 3.23%New York: 3.23%New York: 3.23%North Carolina: 3.23%North Carolina: 3.23%North Carolina: 3.23%Ohio: 4.84%Ohio: 4.84%Ohio: 4.84%Oklahoma: 1.61%Oklahoma: 1.61%Oklahoma: 1.61%Pennsylvania: 8.06%Pennsylvania: 8.06%Pennsylvania: 8.06%South Carolina: 6.45%South Carolina: 6.45%South Carolina: 6.45%Texas: 8.06%Texas: 8.06%Texas: 8.06%Virginia: 3.23%Virginia: 3.23%Virginia: 3.23%Washington: 4.84%Washington: 4.84%Washington: 4.84%Washington, D.C.: 1.61%Washington, D.C.: 1.61%Washington, D.C.: 1.61%Other (Please Specify): 4.84%Other (Please Specify): 4.84%Other (Please Specify): 4.84%MassachusettsPercent: 4.84%Count: 3
       
Alabama 1.61%
 
1
Alaska 0.00%
 
0
Arizona 0.00%
 
0
Arkansas 0.00%
 
0
California 9.68%
 
6
Colorado 1.61%
 
1
Connecticut 8.06%
 
5
Delaware 0.00%
 
0
Florida 1.61%
 
1
Georgia 1.61%
 
1
Hawaii 0.00%
 
0
Idaho 0.00%
 
0
Illinois 3.23%
 
2
Indiana 0.00%
 
0
Iowa 0.00%
 
0
Kansas 0.00%
 
0
Kentucky 1.61%
 
1
Louisiana 0.00%
 
0
Maine 0.00%
 
0
Maryland 4.84%
 
3
Massachusetts 4.84%
 
3
Michigan 1.61%
 
1
Minnesota 0.00%
 
0
Mississippi 0.00%
 
0
Missouri 0.00%
 
0
Montana 1.61%
 
1
Nebraska 0.00%
 
0
Nevada 0.00%
 
0
New Hampshire 1.61%
 
1
New Jersey 6.45%
 
4
New Mexico 0.00%
 
0
New York 3.23%
 
2
North Carolina 3.23%
 
2
North Dakota 0.00%
 
0
Ohio 4.84%
 
3
Oklahoma 1.61%
 
1
Oregon 0.00%
 
0
Pennsylvania 8.06%
 
5
Rhode Island 0.00%
 
0
South Carolina 6.45%
 
4
South Dakota 0.00%
 
0
Tennessee 0.00%
 
0
Texas 8.06%
 
5
Utah 0.00%
 
0
Vermont 0.00%
 
0
Virginia 3.23%
 
2
Washington 4.84%
 
3
Washington, D.C. 1.61%
 
1
West Virginia 0.00%
 
0
Wisconsin 0.00%
 
0
Wyoming 0.00%
 
0
Other (Please Specify) 4.84%
 
3
  Total Responses 62
  Skipped 0
 

2. Do you identify as:

 
 
 
Created with Highcharts 4.1.1Male: 32.26%Male: 32.26%Male: 32.26%Female: 64.52%Female: 64.52%Female: 64.52%Prefer not to answer: 3.23%Prefer not to answer: 3.23%Prefer not to answer: 3.23%
       
Male 32.26%
 
20
Female 64.52%
 
40
Prefer not to answer 3.23%
 
2
  Total Responses 62
  Skipped 0
 

3. Do you identify as:

 
 
 
Created with Highcharts 4.1.1Asian-American: 1.61%Asian-American: 1.61%Asian-American: 1.61%Caucasian: 85.48%Caucasian: 85.48%Caucasian: 85.48%Hispanic: 4.84%Hispanic: 4.84%Hispanic: 4.84%Prefer not to answer: 3.23%Prefer not to answer: 3.23%Prefer not to answer: 3.23%Other (Please Specify): 4.84%Other (Please Specify): 4.84%Other (Please Specify): 4.84%
       
African-American 0.00%
 
0
Asian-American 1.61%
 
1
Caucasian 85.48%
 
53
Hispanic 4.84%
 
3
Native American/Alaskan Native 0.00%
 
0
Prefer not to answer 3.23%
 
2
Other (Please Specify) 4.84%
 
3
  Total Responses 62
  Skipped 0
 

4. Do you currently live with (please note all that apply):

 
 
 
Created with Highcharts 4.1.13.23%3.23%3.23%6.45%6.45%6.45%4.84%4.84%4.84%1.61%1.61%1.61%3.23%3.23%3.23%12.90%12.90%12.90%38.71%38.71%38.71%11.29%11.29%11.29%3.23%3.23%3.23%66.13%66.13%66.13%Blindness or low ... Developmental DisabilityDeafness or hard of hearingHIV Positive/AIDSIntellectual disabilityLearning disability or ...Mobility impairmentPsychiatric disabilityTraumatic Brain InjuryOther disabilities including: ...050100
       
Autism 0.00%
 
0
Blindness or low vision 3.23%
 
2
Developmental Disability 6.45%
 
4
Deafness or hard of hearing 4.84%
 
3
Dwarfism 0.00%
 
0
Epilepsy or other seizure disorders 0.00%
 
0
HIV Positive/AIDS 1.61%
 
1
Intellectual disability 3.23%
 
2
Learning disability or attention deficit/hyperactivity disorder (ADD/ADHD) 12.90%
 
8
Mobility impairment 38.71%
 
24
Psychiatric disability 11.29%
 
7
Traumatic Brain Injury 3.23%
 
2
Other disabilities including: Nervous system disorder, Cardiovascular or heart disease, Blood diseases, Diabetes, Pulmonary or respiratory conditions, Kidney dysfunction, Cancer (Present or past history), Gastrointestinal disorders, Autoimmune disorder, Liver disease, Endocrine disorder, for example, thyroid dysfunction 66.13%
 
41
  Total Responses 62
  Skipped 0
 

5. Are you enrolled in Medicare?

 
 
 
Created with Highcharts 4.1.1Yes: 70.97%Yes: 70.97%Yes: 70.97%No: 29.03%No: 29.03%No: 29.03%
       
Yes 70.97%
 
44
No 29.03%
 
18
  Total Responses 62
  Skipped 0
 

6. If you are enrolled in Medicare, did you have any of the following health coverages before you became eligible for Medicare?

 
 
 
Created with Highcharts 4.1.17.89%7.89%7.89%23.68%23.68%23.68%81.58%81.58%81.58%An Affordable Care ...MedicaidPrivate Insurance0255075100
       
An Affordable Care Act/Marketplace Plan 7.89%
 
3
Medicaid 23.68%
 
9
Private Insurance 81.58%
 
31
  Total Responses 38
  Skipped 24
 

7. How easy was it to change from another kind of health coverage (as identified in question 6, above) to Medicare?

 
 
 
Created with Highcharts 4.1.1Easy: 18.42%Easy: 18.42%Easy: 18.42%Somewhat Easy: 50.00%Somewhat Easy: 50.00%Somewhat Easy: 50.00%Not Easy: 31.58%Not Easy: 31.58%Not Easy: 31.58%
       
Easy 18.42%
 
7
Somewhat Easy 50.00%
 
19
Not Easy 31.58%
 
12
  Total Responses 38
  Skipped 24
 

8. How easy is the Medicare enrollment process?

 
 
 
Created with Highcharts 4.1.1Easy: 17.50%Easy: 17.50%Easy: 17.50%Somewhat Easy: 65.00%Somewhat Easy: 65.00%Somewhat Easy: 65.00%Not Easy: 17.50%Not Easy: 17.50%Not Easy: 17.50%
       
Easy 17.50%
 
7
Somewhat Easy 65.00%
 
26
Not Easy 17.50%
 
7
  Total Responses 40
  Skipped 22
 

9. How much do you understand about Medicare coverage?

 
 
 
Created with Highcharts 4.1.1I Understand a Lot: 17.54%I Understand a Lot: 17.54%I Understand a Lot: 17.54%I Understand Some: 61.40%I Understand Some: 61.40%I Understand Some: 61.40%I Don't Understand Much: 21.05%I Don't Understand Much: 21.05%I Don't Understand Much: 21.05%
       
I Understand a Lot 17.54%
 
10
I Understand Some 61.40%
 
35
I Don't Understand Much 21.05%
 
12
  Total Responses 57
  Skipped 5
 

10. Was it clear to you when you were to become eligible for Medicare?

 
 
 
Created with Highcharts 4.1.1Clear: 47.37%Clear: 47.37%Clear: 47.37%Somewhat Clear: 33.33%Somewhat Clear: 33.33%Somewhat Clear: 33.33%Unclear: 19.30%Unclear: 19.30%Unclear: 19.30%
       
Clear 47.37%
 
27
Somewhat Clear 33.33%
 
19
Unclear 19.30%
 
11
  Total Responses 57
  Skipped 5
 

11. Which of the following would you use to get information about Medicare (you may choose more than one):

 
 
 
Created with Highcharts 4.1.18.77%8.77%8.77%24.56%24.56%24.56%7.02%7.02%7.02%77.19%77.19%77.19%57.89%57.89%57.89%5.26%5.26%5.26%8.77%8.77%8.77%10.53%10.53%10.53%Audiomaterials FacebookMaterials inLarge Print Onlinematerials Printedmaterials TwitterVideos withclosedcaptioning Other (PleaseSpecify) 0255075100
       
Alternative language materials (other than English) 0.00%
 
0
Audio materials 8.77%
 
5
Facebook 24.56%
 
14
Materials in Braille 0.00%
 
0
Materials in Large Print 7.02%
 
4
Online materials 77.19%
 
44
Printed materials 57.89%
 
33
Twitter 5.26%
 
3
Videos with closed captioning 8.77%
 
5
Other (Please Specify) 10.53%
 
6
  Total Responses 57
  Skipped 5
 

12. Where do you (or would you like to) get the most useful information about Medicare?

 
 
 
Created with Highcharts 4.1.161.40%61.40%61.40%31.58%31.58%31.58%15.79%15.79%15.79%40.35%40.35%40.35%54.39%54.39%54.39%7.02%7.02%7.02%14.04%14.04%14.04%AdvocacyOrganizations CommunityHealth Centers,... Faith BasedOrganizations... GovernmentOrganizations... Social SecurityVeteransAdministration Other (PleaseSpecify) 0255075100
       
Advocacy Organizations 61.40%
 
35
Community Health Centers, physician’s offices or other provider offices 31.58%
 
18
Faith Based Organizations (Church, Synagogue, Mosque) 15.79%
 
9
Government Organizations (Libraries, Community Centers, Vocational Rehabilitation) 40.35%
 
23
Social Security 54.39%
 
31
Veterans Administration 7.02%
 
4
Other (Please Specify) 14.04%
 
8
  Total Responses 57
  Skipped 5
 

13. Are you aware that there is a State Health Insurance and Assistance Program (SHIP) in your state to help answer Medicare and related health insurance questions and provide information?

 
 
 
Created with Highcharts 4.1.1Yes: 33.33%Yes: 33.33%Yes: 33.33%No: 66.67%No: 66.67%No: 66.67%
       
Yes 33.33%
 
19
No 66.67%
 
38
  Total Responses 57
  Skipped 5
 

14. If so, how did you hear about the SHIP?

 
 
 
Created with Highcharts 4.1.133.33%33.33%33.33%27.78%27.78%27.78%33.33%33.33%33.33%16.67%16.67%16.67%Advocate GroupGovernment Official or AgencyInternetOther (Please Specify)0255075100
       
Advocate Group 33.33%
 
6
Doctor or Other Health Care Provider 0.00%
 
0
Government Official or Agency 27.78%
 
5
Internet 33.33%
 
6
Other (Please Specify) 16.67%
 
3
  Total Responses 18
  Skipped 44
 

15. Have you worked with your SHIP to help you with Medicare or other related health insurance issues?

 
 
 
Created with Highcharts 4.1.1Yes: 38.89%Yes: 38.89%Yes: 38.89%No: 61.11%No: 61.11%No: 61.11%
       
Yes 38.89%
 
7
No 61.11%
 
11
  Total Responses 18
  Skipped 44
 

16. Was the SHIP able to help answer your questions?

 
 
 
Created with Highcharts 4.1.1Yes: 100.00%Yes: 100.00%Yes: 100.00%
       
Yes 100.00%
 
7
No 0.00%
 
0
  Total Responses 7
  Skipped 55
 

17. Would you call the SHIP again to get help in the future?

 
 
 
Created with Highcharts 4.1.1Yes: 100.00%Yes: 100.00%Yes: 100.00%
       
Yes 100.00%
 
7
No (Please tell us why not) 0.00%
 
0
  Total Responses 7
  Skipped 55
 

18. Have you been a victim of any of the following Medicare or healthcare fraud, errors, or abuse? (check any that apply)

 
 
 
Created with Highcharts 4.1.187.50%87.50%87.50%1.79%1.79%1.79%1.79%1.79%1.79%12.50%12.50%12.50%I have not been the victim of... I was repeatedly prescribed ...A provider refused to bill ...Other (Please Specify)0255075100
       
I have not been the victim of Medicare or healthcare fraud, errors or abuse 87.50%
 
49
Someone stole my Medicare number 0.00%
 
0
I got offered money for my Medicare number 0.00%
 
0
I got asked for my Medicare number at a presentation or on a phone call I didn't make or ask for 0.00%
 
0
I never got services, but I got notice a bill was submitted 0.00%
 
0
I got services my doctor and I never requested 0.00%
 
0
A provider faked a diagnosis for payment purposes 0.00%
 
0
I was repeatedly prescribed unnecessary tests or services 1.79%
 
1
A provider refused to bill Medicare for my covered services/items 1.79%
 
1
Other (Please Specify) 12.50%
 
7
  Total Responses 56
  Skipped 6
 

19. Are you aware that there is a Senior Medicare Patrol (SMP) program in your state to help stop Medicare and healthcare fraud, errors and abuse?

 
 
 
Created with Highcharts 4.1.1Yes: 12.50%Yes: 12.50%Yes: 12.50%No: 87.50%No: 87.50%No: 87.50%
       
Yes 12.50%
 
7
No 87.50%
 
49
  Total Responses 56
  Skipped 6
 

20. If you are aware of the SMP program, how did you hear about it?

 
 
 
Created with Highcharts 4.1.171.43%71.43%71.43%42.86%42.86%42.86%Advocate GroupGovernment Official or Agency0255075100
       
Advocate Group 71.43%
 
5
Doctor or Other Health Care Provider 0.00%
 
0
Government Official or Agency 42.86%
 
3
Internet 0.00%
 
0
Other (Please Specify) 0.00%
 
0
  Total Responses 7
  Skipped 55
 

21. Have you ever worked with the SMP program to help you with Medicare or related health insurance issues?

 
 
 
Created with Highcharts 4.1.1Yes: 28.57%Yes: 28.57%Yes: 28.57%No: 71.43%No: 71.43%No: 71.43%
       
Yes 28.57%
 
2
No 71.43%
 
5
  Total Responses 7
  Skipped 55
 

22. If you worked with the SMP program, did you have a positive experience with the person you spoke with?

 
 
 
Created with Highcharts 4.1.1Yes: 100.00%Yes: 100.00%Yes: 100.00%
       
Yes 100.00%
 
2
No (Please tell us why not) 0.00%
 
0
  Total Responses 2
  Skipped 60