Stories Matter – Please Share Yours

In difficult times, we need your help to be the voice for those people who have nobody to speak for them. We are currently in need of the following stories:


  1. Stories About the Value of Medicare, Medicaid and the ACA
  2. "Observation Status" Problems
  3. "Improvement Standard" Denials
  4. Home Health Care Access Problems
  5. Durable Medical Equipment (DME) Access Problems

Stories About the Value of Medicare, Medicaid and the ACA

What have these programs meant to you?  If you could, what would you like to tell policy-makers about your experiences with Medicare, Medicaid and the Affordable Care Act? How have they helped you?  How would you be harmed if they were taken away?

"Observation Status" Problems

People who receive care in hospitals, even overnight and for several days, may learn they have not actually been admitted as inpatients. Instead, the hospital has classified them as Observation Status, which is an “outpatient” category. This can lead to unexpected costs for beneficiaries.

If you’ve been impacted by the use of “outpatient” Observation Status directly, or know someone who has, please take a few moments to answer tell us about yourself and share your story.

We need to show CMS that this problem affects thousands of people across the country, so in partnership with the John A. Hartford Foundation, we are collecting stories from the people who have been directly impacted. We hope to get at least a few stories from every state.

"Improvement Standard" Denials

By law, Medicare decision-makers are not allowed to deny coverage due to a lack of improvement, or because a condition has “plateaued.”  However, providers and those who make Medicare payment decisions continue to use this standard.

Do you have an Improvement Standard Story?

Under the Jimmo Settlement Agreement, the Center for Medicare Advocacy and Vermont Legal Aid will be monitoring compliance with the terms of the settlement.  We want to hear from you. Please keep us informed of your experiences, both positive and negative.

Home Health Care Access Problems

As part of the Center’s Home Health Access Initiative, we are collecting stories from beneficiaries and caregivers who have had difficulty obtaining necessary home health care as ordered by their doctor. Please share your story below!

Durable Medical Equipment (DME) Access Problems

With the support of the Jeffrey P. Ossen Family Foundation, the Center is collecting stories about access to durable medical equipment to help individuals better obtain the medical equipment and supplies they need.